Great News!

Trevor had his post-op appointment today and everything is great! The tumor/mass they found was an abnormality that he was probably born with. While the brain nerves were forming a few of them got mixed up and formed a cluster that started growing, it has a long name, but that doesn't really matter. What matters is that they got it all and the tests came back clean.

Since the surgery Trevor seems more focused, sharper then he was. He's using words that he's never used before in a normal conversation. The doc said that with the seizures he was having most likely was the reason for having a hard time with some of his school work, concentration and comprehension. He said that will definately improve.

Trevor will probably have alot of little bumps in the road, but for now he is doing well, therefore I probably will not be updating after this. If there ends up being some big achievements, I will post again, otherwise thanks to you all for being so supportive and all of the nice letters and emails.

Thanks!
Dawn

Tuesday... not much goin on

Just wanted to update everyone, Trev is doing well, still sleeping alot! He is now sitting down doing homework, that HE asked for. Tomorrow we go to the doctor for the post op appointment, I believe they should have some answers about the "thing" they pulled out of his head, I'll update then.

Friday

There isnt too much to report, Trevor is doing better then I had expected, he has actually asked me to get him some homework? Did they add something while doing the surgery? He still gets tired pretty easily, other then that, it seems pretty normal around here.

Pictures of the journey

Some of you may feel uncomfortable about looking at the pictures, there is nothing gross, just looking is sometimes hard.



Getting ready for surgery












After surgery in the ICU













Day 2 he got out of the icu and into the patient recovery rooms.












Day 3, he got his "turbin" off.
















The day after we got home his eye started swelling and closing.











His incision













Close up view of incision

More Updates

Trevor hasn't been doing that great today. He cant keep anything down, he is still in alot of pain but he will give you a smile if you look at him.

Two days before his surgery I took the kids to get their pictures taken, here is the link ... make sure you turn up your volume for this... it is pretty funny.

Tawnie and Trevor's music video

Updates...

Trevor is doing well at home, he is sleeping ALOT! His right eye, the same side of his surgery, is really swollen and black and blue, like he got into a fight and lost.

I hope to post pictures soon from the day of surgery until now, just to keep track of his healing time, more for other people online looking for information on children that have had or need brain surgery, I know I couldn't find anything online when I wanted to know more.

We've had lots of visitors and gifts and I'd just like to thank you all for that.

We're HOME!

Can you believe it? Trevor is doing so good they thought he could go home, I'm a little nervous though. He is walking fine, just a little wobbly still, he is very alert and back to his smart ass self! Today he got on the computer at the hospital to play a game, he played for about 10 minutes and then started to slow down and he realized how tired he was. I guess this will happen for awhile. He's happy to be home though, we told him he didn't have to do his chores tonight but tomorrow was another story. :) Noooo, we'll wait on that.

Thanks again everyone for all of the great posts, emails and phone calls.

Today

Trevor wants to go home... he thinks he's ready but has to wait at least another day or 2. He was finally able to walk to the bathroom in the middle of the night, he didnt like the handheld urinal thing. He's joking around with the nurses and looking great. They took off his "turbin" today, the scar is bigger then i thought it would be. He wanted to take the "turbin" home, but then realized that it was a wrap and it doesnt come off like a hat but gets unraveled.

He's doing really well, alot better then i thought he would be doing so soon.